Wednesday, August 16, 2017

New Zealand Bone Marrow Donor Registry

July 26, 2011 by  
Filed under kiwiStyle

Being diagnosed with a blood cancer or related blood condition can be overwhelming, and coming to terms with it can create many challenges. The aim of the The Leukaemia & Blood Foundation (LBF) is to ease some of this burden.

In addition to assisting those undergoing treatment, they also provide support to families who experience difficulties when a loved one becomes ill. The Leukaemia & Blood Foundation (LBF) is the leading organisation in New Zealand dedicated to supporting patients and their families living with leukaemia, lymphoma, myeloma and related blood conditions.

Patient Support

They provide personalised support programmes for patients and their families. This can include regular visits, phone or email contact, as well as face to face education and support programmes and an online information forum. They also provide a toll free number for advice, empathy and support.

Research

Research plays a critical role in building a greater understanding of blood cancers and conditions. They support and fund investigation into these blood cancers and conditions – nearly $1.6 million to date. Improved treatments for patients can lead to increased survival rates.

Information

They provide vital information to patients, families, health professionals and the community to improve understanding about blood cancers and conditions. Their materials include:

* Materials: Disease-specific booklets, LifeBlood and Lymphoma Today newsletters, posters and a lending library of written and audio-visual materials
* Multi-media: Educational videos

Awareness

They work to increase public knowledge about leukaemia, lymphoma, myeloma and related blood conditions. They believe that building community awareness and knowledge increases public support and involvement. Their campaigns include:

* Awareness: World Lymphoma Awareness Day, Leukaemia Appeal Week
* Fundraising: Shave for a Cure, Firefighters Sky Tower Challenge, Dining for a Difference, Golf Marrowthon

Advocacy

They represent the needs of patients and their families to the Government, related agencies and other relevant organisations. They also act on the behalf of patients and their families on issues that arise in relation to their diagnosis.”

RELATED

1. Treatment: Leukaemias 2. Treatment: Acute myeloid leukaemia (AML) 3. Treatment: Chronic myeloid leukaemia (CML) 4. Treatment: Acute lymphoblastic leukaemia (ALL) 5. Treatment: Chronic lymphocytic leukaemia (CLL) 6. Treatment: Multiple myeloma 7. Treatment: Lymphomas 8. Treatment: Non-Hodgkin lymphoma 9. Treatment: Hodgkin lymphoma 10. Support Services Referral Form 11. Patient Support 12. Firefighters Sky Tower Challenge

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