Thursday, April 25, 2024

New Zealand Organisation for Rare Disorders (NZORD)

October 8, 2008 by  
Filed under kiwiStyle

NZORD’s mission is to support and improve the level of organisation and information among patients and families affected by rare disorders while promoting research and education that will identify rare disorders early and ensure

TubB or not TubB

September 27, 2008 by  
Filed under Main Blog

As time goes by I’m more and more convinced that what matters most to us, is not ultimately, what matters most to a single other person in the world. And why is that? Because unless we’ve taken the time to explain in depth to a single other person why we think and

Rain on their Parade

July 24, 2008 by  
Filed under Main Blog

Call me simple but most of the time I don’t get pettiness. It looks like a waste of energy to me and it’s so projective. I’ve often wondered

The Morebit

July 18, 2008 by  
Filed under Main Blog

As time goes by I’m more and more convinced that what matters most to me, is not ultimately, what matters to a single other person in the world. And why is that? Because unless we’ve taken the time to explain in depth to a single other person why

Strength for Us Both

May 25, 2008 by  
Filed under Main Blog

Some books draw us back to them because some truths need more time for us to sit with them. To have us weigh and consider more carefully those things they feel need further thinking on by us. When I first read Marianne Fredriksson’s “Hanna’s Daughters” 18 months ago I was inexplicably moved. The story could […]